“I’m running 10 marathons in 100 hours for kids with this deadly brain disease”
• Former soldier Darren Hardy will run 10 marathons in 100 hours non-stop for children with H-ABC
• Darren came up with the challenge after reading about Aggie Candy-Waters, 13, who was diagnosed with the life-limiting brain disease when she was five years old
• Every penny will fund human trials of new life-saving gene therapy that will help save H-ABC kids’ lives
Weeks ago, Darren Hardy, a 36-year-old former soldier and father of two young daughters was reduced to tears when he heard about a British schoolgirl, Aggie Candy-Waters, who was diagnosed with this deadly brain disease at the age of five. Now 13 years old, Aggie who used to run, play and sing is permanently in a wheelchair and is rapidly losing her fine motor skills - meaning she is fed, dressed and carried by her parents and is losing her ability to speak.
But, there is new hope. Doctors at the Children’s Hospital of Philadelphia have made a breakthrough. New gene therapy that slows down the disease in mice could help save Aggie and children like her. We need £1m for human trials to begin, which is why I’m racing against time like Aggie. Every penny counts!
🙏 THANK YOU 🙏